Saturday, November 7, 2009

The Waiting Game

I don't often complain about waiting lists.

In Canada, with socialized medicine, we often have waiting lists. You wait to see your doctor. You wait for a specialist. You wait for your tests. Heavens, sometimes you wait weeks or months to start chemo or radiation treatments.

We've experienced very little waiting. Generally, what Abby needs she gets in very short order. I guess that's one of the benefits of having an acutely ill child so early in life.

But now, really for the first time in Abby's life, we're playing the waiting game.

Two important transitions happened this week. Yesterday was one of Abby's ABA tutors last day. We were heartbroken that she was leaving (Honey, if you're reading this, don't feel bad... we understand. Really. We knew it wasn't forever.), as Abby loves her "girls". I would smile when I heard them playing a favorite game of "touch the ceiling", or when they sang funny and familiar songs together. Therapy time was very much fun time.

We had several weeks warning that she was leaving, but it still feels like that in the blink of an eye, she was gone.

So we wait. For a replacement. Which none suitable has yet been located. Abby still has her other "girl" in the mornings, another young woman who she (and we!) love dearly. But it's just not the same.

And now, we also discover this week that our time with the speech language pathologist has been cut short. We knew our time was ending soon, as her belly grew rounder and bigger and her due date drew near. But she's had problems with the pregnancy, and she's been told to quit working. Now.

So in the blink of an eye, literally, she was gone.

So we wait. For a replacement. Which none suitable has yet been located. Abby is at the top of the priority list for the next opening with a SLP, but we might be waiting awhile. As in, we might be waiting a year until our regular SLP is back from maternity leave.

I have, in my past, struggled with things like anxiety. As most people who have had to deal with that monster-in-the-shadows will tell you, the hardest thing to deal with is the anticipation. The not knowing. Simply, the waiting is what gets to you.

::drums fingers on desk, waiting::

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